More than 2 years post autism diagnosis, our lives have
changed so much! LJB is in pre-school for
4 hours every day. He receives
Occupational Therapy, Speech Therapy, and Behavioral Therapy at both pre-school
and with our private therapists. These
saints (a.k.a. therapists) have worked magic with my child! I don’t know what we would do or where we
would be without them.
All of his progress is great, but can I be real with you? Let's just be real.
Before we were thrust into this world of therapies and home
visits, I was always so concerned with making sure that things were just so before we had company. I would never have let someone in the door of
my home if the floors hadn’t been swept, the toilets scrubbed, all surfaces
dusted, etc. I made sure everything was
in its place and perfectly tidy before we had guests. This has all gone out the window. At our behavioral therapist’s last visit,
there was a pile of day old dishes in the sink, the couch was covered in a thin
layer of cat hair, LJB’s dirty clothes were in the living room floor, and there
were tooth paste smears in the sink. I
just didn’t have the energy to pretend any more. Our life is chaotic and my
house is messy.
You know what? She never batted an eye.
In the new year, I’m working hard on being real. Stop pretending; stop fussing over the things
that don’t matter. There were dirty
clothes in the floor because I spent an extra 10 minutes that morning snuggling
my boy. The dirty dishes? Yeah, that’s because after a full day of work
and a therapy appointment, I managed to cook a nutritious meal for my
family. What can I say? The tooth paste is evidence that after more
than a year of meltdowns and interventions, LJB will actually let me brush his
teeth (most days). The cat hair is from
the cat that brings comfort to an overwhelmed 4 year old after a day of big
demands, working harder than 95% of the adults I know. I wouldn’t change a
thing about that mess.
So, if you come to my house – and you’re always welcome-
just know it’ll be real. I won’t be
pretending. There will probably be
dishes in the sink and a mess in the living room.
On a related note, I’m trying to be more real and let Lennon
make relationships on his own terms. I’m
retiring my helicopter wings and leaving him to play. This is possibly the hardest thing I’ve done
since I became a parent. Letting him go
and watching him struggle to talk to friends is so hard. When his friends, cousins, care givers, etc.
give too many verbal instructions, or ask too many questions, LJB’s brain stops
working. He gets so frustrated.
Typically LJB will try one time to use words to let someone
know that he is becoming overwhelmed.
However, this usually just sounds rude to someone who doesn’t understand
that when he yells, “STOP TALKING!” what
he really means is, “The words are coming out of your face faster than they can
be processed by my brain.” After that
one chance, he resorts to some of the old
behaviors that we are trying so hard to extinguish. He throws things, becomes self-injurious,
cries, hits, etc. I try staying away,
letting him work it out. But it is hard.
So I’m not going to pretend like it’s easy to be real and to
let go BUT since I began making the effort I’ve been less stressed. I’ve learned that those that love us, love us
no matter what my house looks like or how many times LJB tells them to “STOP TALKING!” The mess can wait, it’ll
be there tomorrow. In the meantime, I'll be snuggling my boy and his kitty, we'll be having our home cooked dinner on the couch, and watching the Lego Movie for the 10 billionth time. This is real life.
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